For 2009/10We have worked together with those who provide services for children with disabilities and their families to help plan and improve the quality, range and accessibility of these services. We have representatives on at least 41 active work streams and we work in partnership to promote best practise. Details of our work and achievements are as follows: - The setting up of a network of parents and carers in Lincolnshire.
During the year we have set up and maintained our network of parents and carers of children with disabilities and additional needs in Lincolnshire. During this time our part-time administration assistant added over 1700 parents’ details into our confidential database. - Informative website with free subscription online.
The website is currently being refurbished to include online consultations, surveys, and up-to-date information on all the work streams.
We have set up our own telephone helpline, enabling us to help and signpost parents if necessary.
- Regular informative newsletters to all parents and carers on our network.
The newsletter goes out regularly to parents on our network informing them of issues relevant to their situation and as importantly giving them a chance to feedback on any relevant issues, so we are able to represent their views at every level.
- We have supported Lincolnshire County Council develop the Emergency Response Card for carers so there is a record of an emergency plan in the event of the parent carer having an accident or emergency.
To access this scheme you need to have had a Carers Assessment. To apply for one, please phone the Carers team on 01522 782224 or email
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- 2 ‘away’ days held to discuss our strategy, devise and adopt policies for the group
- First and second phase of Aiming High grant secured and fully used. We are waiting to hear about the third phase.
- Grant for LPCC Liaison Officer secured through Carers’ Partnership.
In June 2009 we secured a grant for a LPCC Liaison Officer whose main role is to identify ‘hidden’ and isolated parent carers and help support those we already know of. In 2010 we are linking in to the many childrens centres around Lincolnshire and continuing with our established Coffee mornings and parents events.
- Large scale research into the county’s education provision
We have obtained over 1480 responses to an Education questionnaire from parents and a further 128 responses from SENCos. Some of the data has already been analysed and shared with service providers and parents. Once we complete our work on this, we will feedback to relevant parties and parents in due course.
- Coffee Mornings in 7 Local Children’s Partnership districts are organised frequently
We have organised our own coffee mornings in the 7 local partnership areas, which were well attended. These were attended by the local Parent Support Advisor and health trainers who came to talk to parents. We have also identified an additional unsupported area on the East coast and we will be holding regular coffee mornings there. We also liaise with the Carers benefits worker who is able to advise parents of their benefit entitlement at our coffee mornings. - In October 2009 we hosted two Health Consultations surrounding the replacement of Consultant paediatricians in Lincolnshire.From this we have compiled a report which will hopfully influence the Paediatric review -submitted to Parliament.
LPCC Report on Health Consultation. - Presentations to the Carers’ team regarding parenting a child with a disability
- Presentation to the Parent Support Advisors about the work of this council
- Held meetings with SENCos and Parent Support Advisors in schools to inform them of our work
- Had meetings with Health trainers regarding our role
- Holding 7 parent carers conferences throughout Lincolnshire; one in every Local Children’s Partnership district.
Feedback from these will be shared in a special post conference newsletter. - Meeting regarding the Showroom project - a consultation for a world class, multi use, youth facility in Lincoln. Feedback was required from parents of children with disabilities and was duly sent to the manager.
For 2008/09- Aiming High for Disabled Children
We have received a grant to help bring parents together and to make finding out information easier. We are doing this by getting in touch with you and finding out your views as well as telling you about support that is available.
- Children and Young People's Plan
The draft of the Children and Young People’s Plan started a new sub-group for the LPCC, which reviewed the plan and fed back all the comments and amendments to Children’s Services within the tight deadline in 2008. We are doing the same again this year too. - We were key to taking your views to the decision makers when Lincolnshire County Council reviewed the statementing process. We held parent consultations to draw up the SEN proposal for Lincolnshire which were received by the decision makers within the Lincolnshire County Council.
- We arranged meetings with Roger Bushell who is doing research on behalf of the Department for Children, Schools and Families (DCSF) to feed into the Special Educational Needs Implementation Bill 2008.
- SEN Proposal for Additional needs
During April 2008 we hosted two consultations on the SEN Proposal for additional needs. From these consultations we compiled a report of our members views.
LPCC Report of consultation on SEN Proposal
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